This from CNN. Capt. Scott Southworth deployed to Iraq and in the process adopted a young boy named Ala'a. It was a long drawn out process. You may be able to imagine how difficult it is to adopt a child from Iraq during these times.
I recommend that story. Read it here --> 'Web of miracles' join soldier, disabled Iraqi boy
"Hope I inspire other disabled people to engage in their life term ambitions."
This man has used technology to allow him to be a DJ. His hands have limited dexterity so he types with his nose.
It shows how he uses the computer to make the mix.
In this video, I explain how I use my PC to enable me to be a DJ. As I'm disabled, I am unable to physically use real decks and mixers, etc.
I would like to dedicate this video to ellaskins, as he requsted me to do a video like this, and also inspired me to keep at DJ'ing.
Also, sorry about the sound quality.....
Feel free to contact me if you would like to know anything (my email/etc are on my profile)
Head on over to Rudy's Disability Resource Guide.
Here's what he has to say about his blog Which has up to date and current content...Something I always appreciate in a blog.
This is a web site with links to information on a wide variety of disability issues it is intended both for people with disabilities and those who wish to learn about disability issues. The main goal of this web site is to raise disability awareness and understanding. It's a place where people can do research on disability issues. I also wanted to be a place where people can share experiences and help each other.
About the founder of this site
my name is Rudy I have cerebral palsy and I am in a wheelchair. I have also had chronic pain for the past 10 years I love to do research and I hope people benefit from what I find and post on this web site.
I am constantly amazed at what Youtube has done to the Internet and to conversations about different subjects. It is not just a platform for watching home movies of dogs doing flips, cats caught in bags or a place to place advertisements to run elsewhere in the web.
It is also a place where people can Vlog or V-Blog (whatever you want to call it). A V-Blog is a Video Blog. So instead of maintaining a blog like we do here by typing, you can create a video entry and "post" your thoughts. Here's a guy (John) posting his first video in order to start a conversation and talk about himself. He happens to have cerebral palsy but that is only part of what he wants to blog about.
Link to his YouTube Home page, Pontificating Palsy
I have been reading Get Emily Walking for several months now. Today her entry really struck me. There are big emotional ups and downs for family's who have disabled children. Here's a quote from today.
Ask any mother with a chronically ill child and they will tell you that during this time you keep your head down and focused on keeping everything together. You can't look up for a second because if you do you'll lose it. If you start to cry you'll never stop so just keep your nose down and push to the end. Mom's with sick kids need gentle help. You have no idea what it's like to be a parent in control of everything one minute and the next you're free falling through the air not knowing where you're going to land. If you're like me you'll try to do it all alone until one day you're so sick you fear you might collapse and you finally admit to your friends that you need a little help. If you're lucky like me you'll have a group of special people who try to catch you. I'm very bad at asking for help, always have been and actually I've very unlikely too LOL but really good friends know what you need and just do it.
I have nothing to add to that.
http://getemilywalking.blogspot.com/2007/11/my-confusion.html
I've decided to start a new category here and I've called it "Amazing Families...Amazing Blogs". I have found over the years that I have been blogging that I routinely stumble upon blogs written by mothers, fathers, brothers and sisters about their life. Usually these blogs are highly personal, sometimes raw with emotion and incredibly honest about the struggles and joys associated with having a child or sibling with cerebral palsy or some other disability.
Today I start with "Bird on the Street" If you are interested head on over there and enjoy the writing. It is from the heart.
Here a woman has been able to write, shop, do her banking, communicate and design her own websites. She has a pivotal role in the household because of technology. As she says in this video. The computer has saved her life.
Marie-France has lost her voice and can only move a jaw muscle because of Amyotrophic Lateral Sclerosis (ALS), also known as Motor Neurone Disease (MND) or Lou Gherigs Disease. She shows how, with a single switch and AssistiveWare's Proloquo, KeyStrokes and SwitchXS software, she continues to perform a pivotal role in the household by doing the shopping, managing the bank accounts and even designing her own web site.
And here is the website of the company involved in this technology.
More evidence that technology helps people with various disabilities. Heather is a woman with cerebral palsy. She has created a business in Graphics design. http://graphicsafoot.com/
From a YouTube Posting...
Leigh-Anne Tompkins was born with cerebral palsy. This did not stop her from making her dreams come true. She graduated magna cum laude in Fine Arts and now has her own company: Graphics Afoot Studio Design.
Watch her video at Youtube showing how she is able to create great designs.
I have noticed lately the increase in assistive technology on the web. Back a couple of weeks ago I mentioned Glenda in Left Thumb Blogger . This time it's Mike Phillips. Here is a video showing what he can do in a gaming space. Here is his description from YouTube.
Mike Phillips is a gamer and freelance technology writer born with spinal muscular atrophy (SMA). Using his thumb and a proximity switch to access his computer he is a prolific journalist and has contributed chapters to several books. Assistive technology has opened the world for him.
I received an email introducing me to this website. I went through it today and it is excellent. I recommend it for any family who has someone with a Traumatic Brain Injury.
Here is the email which describes the site quite well.
[The Brain Injury Recovery Network offers] information to brain injury victims and families on the site and also have a toll free support line, all at no cost to the families. Our URL is below:
www.tbirecovery.org
The Brain Injury Recovery Network is a 501(c)(3) non-profit organization dedicated to helping victims and families of brain and other serious injuries.
We have developed our Web site in an attempt to provide practical, actionable advice from people who have suffered through the same experience. Our goal is to see that victims of brain injuries are given every chance possible to recover. We provide information and support for both the crisis phase and the long-term care phase of recovery as well as prevention programs. During our family’s own experience with our daughter’s injury we felt there was an information void as we were thrown into a horrible situation without any guidance. We hope our site addresses some of the key issues.
This magazine is for more than just cerebral palsy families. It is for parents, families, doctors or anyone involved with special needs.
The most recent issue on my desk has a cover story about Walter Reed Hospital and how it is working with its staff to help wounded military personnel overcome injuries.
Check it out at www.exceptionalparent.com
Group B strep is a naturally occurring bacteria that is present in the intestines and vagina of about 25% of women.
Group B strep (GBS) is a bacteria that should be routinely screened for in pregnant women. Why? Well the bacteria can infect the baby when the membranes of the amniotic sack break. This might occur during the actual labor.
If an infant is exposed to GBS then it can develope an infection that can possibly lead to meningitis and that increases the risk of brain damage and ultimately cerebral palsy.
Continue Reading...I was skimming through some Yahoo News today and found this article explaining in pretty straight forward terms what physical therapists do.
This is where I look for quick basic medical information to begin any search I have relatig to medicine.
Are you looking for some information of Cerebral Palsy resources...Start here. United Cerebral Palsy. They say it best themselves.
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.
You can put in your zip code to get local resources. If there are no local resources then they refer you to the state level. They have email notifications for new articles and "channels" or categories covering education, housing and much more.
How can we help? Any information you provide is considered confidential and will not be shared outside of our firm
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